It’s My Life!

It’s My Life ~ Bon Jovi

This ain’t a song for the broken-hearted
No silent prayer for the faith-departed
I ain’t gonna be just a face in the crowd
You’re gonna hear my voice
When I shout it out loud

It’s my life
It’s now or never
I ain’t gonna live forever
I just want to live while I’m alive
(It’s my life)
My heart is like an open highway
Like Frankie said I did it my way
I just want to live while I’m alive
It’s my life

This is for the ones who stood their ground
It’s for Tommy and Gina who never backed down
Tomorrow’s getting harder, make no mistake
Luck ain’t enough
You’ve got to make your own breaks

It’s my life
And it’s now or never
I ain’t gonna live forever
I just want to live while I’m alive
(It’s my life)
My heart is like an open highway
Like Frankie said I did it my way
I just want to live while I’m alive
It’s my life

You better stand tall when they’re calling you out
Don’t bend, don’t break, baby, don’t back down

It’s my life
And it’s now or never
I ain’t gonna live forever
I just want to live while I’m alive
(It’s my life)
My heart is like an open highway
Like Frankie said I did it my way
I just want to live while I’m alive
(It’s my life)

And it’s now or never
I ain’t gonna live forever
I just want to live while I’m alive
(It’s my life)
My heart is like an open highway
Like Frankie said I did it my way
I just want to live while I’m alive
(It’s my life)

Songwriters: RICHARD SAMBORA, JON BON JOVI, MAX MARTIN
© Kobalt Music Publishing Ltd., Sony/ATV Music Publishing LLC

I love the lyrics to this song ~ it’s a very simple message and yet it is so easy to feel that you have no control over your life and its direction. In actual fact you do have far more control than you give yourself credit for.

Life does, frequently it seems, like to throw spanners in the works which makes you veer off your desired trajectory towards another direction. However, it’s how we cope and manage the change in direction that makes the difference.

As a family we have made umpteen plans for both long and short term futures, only to have them nudged off course, sometimes halted altogether.

In the past these derailments really upset us which made us reluctant to make plans ahead of time. Instead only looking at the immediate future and try to organise things then. Obviously this isn’t practical and so a rethink was needed.

I now have a number of dates in my diary and I hope, I plan, to be able to honour my commitments but the difference now is that prior to fixing a specific date and commitment I give a warning that there may be a possibility that on the day, at the last minute, I may not be able to honour it due to the unpredictability of health issues within our family. I no longer become anxious or fearful of the other parties reaction because I have been straight and up front in the planning.

Some things in our lives we can’t control, it’s how we react to them that matters. It’s not only myself but also my husband and three daughters who have health issues. I used to wail and gnash my teeth wondering why us, why do we have to deal with this. All this ended up in not making me feel better for having a good old wail but worse and more melancholy.

Now, I am trying not to let the negative get to me, trying being the operative word as these things take practice. I try to appreciate what I do have, which is an awful lot when I take the time out to sit and look at it clearly. My family are amazing, together we lock tight together when facing any adversity. Yes we fight, we yell and we fall out ~ but never for very long, we don’t let arguments fester but clear the air and move on. Something we may not have had the skills to do had we not shared so much heartache, ill health and prejudice from others. It amazed me how many people in authority refused to help us within the education system and several individuals within the Childrens services too. However, we made it through by sticking together in these face offs, researching our rights and knowing what we were within our rights to request or do ourselves.

I am grateful all my daughters are now adults as the difference in how they are treated by adult services is incredible. No huge barriers but a listening ear and help offered.

So,  “It’s my life and it’s now or never, I ain’t gonna live forever ~ I just want to live while I’m alive” ~ words to live by.

I would advocate everyone have a hobby that they can lose themselves in, even if it’s for a short while. It does the soul good to do something which rewards you either emotionally or physically.

My hobby or “me time”  used to be walking the dogs between 5~7 miles a day, it was “my” time when I would pop my ear buds in and listen to music as I walked, letting the dogs sniff and pee to their hearts delight!

Now I am unable to walk far at all, but am not ruling out being able to walk the dogs in the future. I am taking my life back as much as I can, asking for help as I go along. I have a appointment coming up to have 40 patches placed on my back testing for various allergies which may be exacerbating my ME and causing autoimmune changes. Once I have these results back I am hoping to see where I can make changes to *fingers crossed* make beneficial tweaks to eliminate the reactions these allergens cause and try and balance my autoimmune issues and then try and balance my issues raised by my ME and pace myself to reach some kind of equilibrium.

My hobby ~ that’s easy, it’s photography. Not formal or guided by a tutor but pure indulgence of messing about with my camera and differing lenses to see what I can create. I love that there are no rules, no boundaries other than my imagination and technical skill. When I have my camera I am transported to another place, where I am in control, I can literally lose time and love it.

My material is often the very same subject matter taken at different times of day in different weathers. I try to see things in different ways each time, to offer new images even though much photographed. On the odd occasion when I get outside of my home and garden I become click happy, I literally click several times with every step ~ when I look up from my camera I just see my families bemused faces as they watch me.

Here are some photos I took just the other day, I hope you enjoy looking at them..

x~X~x

Author: crazypurplemama

Adore all things purple, wife, mother, amateur photographer, dog lover & Blogger.

Let's connect I'd love to hear from you..

This site uses Akismet to reduce spam. Learn how your comment data is processed.