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It’s All Up In The Air

Posted in Personal Blog

Today I am questioning all previous medical diagnosis’. I may/may not have Myalgic Encephalomyelitis and Fibromyalgia. Instead I may/may not have Lupus ~ or something else as yet unidentified.

This leaves me feeling up in the air, no idea how I feel about my health ~ other than something is very definitely NOT right.

I am currently on steroids for Vasculitis which will take me through to the other side of Christmas.

Images of the vasculitis prior to starting steroid treatment.

I am then being seen again by a doctor in the New Year to reassess and formulate a plan. I have been told that the most likely next step is to be referred to a rheumatologist for assessment and testing for Lupus and/or other possible considerations. Although the previously thought Rheumatoid Arthritis has now been ruled out after blood tests have come back as being clear on that score.

Symptoms are severe fatigue, pain, cognitive issues, rash, swollen ankles, mouth ulcers and stomach upsets. It is also noted my kidney function is lying on borderline stage 3 kidney disease ~ which hasn’t got any worse and tests are down to be taken again in March next year. It was also noted in abdominal scan that my spleen is 2cm longer than it should be although nothing is recommended to be done for that.

swollen ankles
delicious lumpy swellings around ankles which never go down and increase throughout the day.

I am trying to look into what other issues can cause these symptoms but as yet have no idea. I want to do all I can to improve my health and so would like to throw it out there to you all ~ any tips, dietary changes, advice you can give will all be eagerly accepted and ruminated.

Wishing you all good health and happiness and for those of you who are suffering I send you my love and hopes for some help and improvements for you over the forthcoming days.




  1. I don’t “like” this, it’s awful, but there isn’t a “Have-Read” button. I hope they can get to the bottom of all this sooner rather than later, sending you love xxx

    9th December 2017
  2. Sounds awful! It’s such a problem that these illnesses are so poorly understood.

    8th December 2017
  3. Thank you for the post. I’m sorry to hear you have to deal with all these issues and I wish you relief and joy in the future. Have you thought about doing a Ketogenic diet? I’m no doctor, I have just heard that restricting certain carbs can help cleanse the body.

    8th December 2017
    • I’ve not heard of that diet & will look into it ~ thank you 💜

      8th December 2017
      • You can check out my blog or Google or both.

        8th December 2017

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